Tag: adhd late diagnosis

Ministry of Sounds

Ministry of Sounds

by ee grant ♥ 0 Leave a Comment

Another in my series of living with ADHD, and not really realising it. Link for part one, Returning to Self and link for part two, I’ll Tumble 4 Ya. This one is a hot mess of sounds, time awareness and bruises.

I remember driving out of Doncaster Shopping Town, our son was still in his car seat with a five point harness, so not very old. He was cross, he was ratty, he was over shopping, people, lights and noise and his general demeanour in turn had set me off. I was sat at the traffic lights, also ratty, also over people, lights and noise so I did what I do to cope.

I put on some music really loud.

Our son started crying louder. I turned it up so I couldn’t hear him.

3.2km later (I’ve just looked it up), I had to pull into a garage at the roundabout, I was also now crying. I stopped the car in a parking bay and got into the backseat next to him. I undid his car seat and we sat with each other. Me apologising for putting the music on and upsetting him more.

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In my late teens and early twenties I discovered clubbing. I went out to dance. From 9pm to 1am, two or three nights a week, I was on the floor. I didn’t care if I was the only one dancing, unusual for me not being worried about being up and visible. The music and the clubs I went to were a safe haven. The music pounding in my chest, took all thoughts away from me.

The bouncers knew me by name, I’d go clubbing with P and later E. Whoever I was with, it meant we’d be pulled out of the queue and fast-tracked in. The taxi company P and I used would also send a car out quicker to us at the end of the night, because they knew we were only 8 minutes up the road from the club and were sober. A quick turnaround and an easy job.

Every so often you get a song that lifts everyone and is the song of the season. If you’re lucky, its a great tune and will stay on the DJs radar, this is a song I listen to almost daily and I still love.

Bonus points if you knew what it was going to be before the link opened up 😉

It was a total floor-filler, the entire dancefloor wafting around in the middle of the song, waiting for the beat to drop and then we’d all go crazy. That song is my everything. It’s my starting ritual. It’s my mood changer when the world has gone to hell in a hand basket (hence the daily play). It’s my pep talk. I honestly can’t tell you how much I love it.

I’m going to do a playlist on Spotify, watch this space.

Rarely, I can also use it for a burst to get me through and give me one spare spoon for the day. If I do use it for that, I know I will need to get to bed earlier and sleep later as I’ll be useless in the morning. Life-style-tip, having batch-cooked and running a pantry saves me; because when I’m totally fried, it is very rare that we as a family won’t have something to grab and go for lunch or to nuke when we’re home in the evening for dinner.

Saltwater came out just as my heyday of clubbing in Eastbourne was coming to an end. In those days, we didn’t have the Spotify, so would you believe, I never knew what it was bluddy called! In a pub in deepest Wiltshire, I was behind the bar, on a walk around collecting glasses, the DJ put it on so he could have a pee-break. Crossing the dance floor, I asked him ‘What is this called?’ From the next morning, first via Napster.

Around the same time; we worked it out it was within the same month, the husband walked across a dancefloor in a pub in Townsville to ask the same question. About as far away from Wiltshire you can get. He still loves it too.

—

I was in Coles supermarket in the town we used to live in before we moved to Regional Victoria. I got to the tills and freaked out, leaving my shopping behind. I took our son and just bolted to the car. I thought I was having a panic attack, or extreme anxiety. Nope, I was again overstimulated, overwhelmed and overambitious about what I needed to get done.

The husband and I were both working full time, our wee man was in nursery full time. However, I wasn’t being paid for nearly six months of the year as the child care rebate cap (subsidising care for working parents), mostly being that around each January if you work full time you will hit the ceiling of what is paid to the centre. Leaving you to pay everything. Which means, my entire take-home wages went on fees from January through the end of June. I’d get a tax rebate at the end of the financial year, we’d pay some off what we’d had to put on the credit card. Wash and repeat for six years.

The husband was trying to keep it all together at his work, heading into the city from our suburb, getting up and onto a train before our son was awake. Our son was also picking up every single bug going, if he woke up poorly, I would be the one that had to stay home. When my six months trial period came up, the aforementioned eejit said ‘I don’t know if you’re suitable, you’ve not been in for a full week since you started.’ I had hysterics, took advice and offered to extend my trial period out for another six months to show that I was. There is more I could say here, but we’re going to leave it for now.

Being employed for over six months did mean I was able to access the EAP, (Employee Assistance Program). The Monday after the Coles trip the weekend before, I called the EAP from a meeting room. I said that I was having problems with my son. Reader, I wasn’t, I was in full flight mode and just pegged it out of Coles because my body told me too. My clearest memory was carrying him out like a surfboard when I shot out of Coles, I had put all my focus on us leaving. At the meeting, I was met with someone armed and ready to give me parenting advice. Not to talk me through having a meltdown myself, which is what happened.

From there I did get some regular counselling, but that eejit? I had to work late to go to appointments, even if they were over my lunch break. Did I mention disdain and disregard is something to look forward to working through with ADHD too?

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You have permission to rest. You are not responsible for fixing everything that is broken. You do not have to try and make everyone happy. For now, take time for you. It's time to replenish.

Learning to rest and recuperate is the hardest lesson I’m learning.

—

Writing about what I’ve been like my whole life, has taken me back to through time and place really clearly. I know we’re all struggling with time as a concept since 2019, it really has become more nebulous the world over. But that is what it is like for me, all the time. No pun intended. Whenever I’m going ‘home’, that is basically where I’m sleeping tonight. If I’m your guest wing, that’s home.

My sense of place and time is truly up the wahoo. If I say ‘A few weeks ago’, that could mean anything from about 2010 onwards. I’ll say ‘You remember!’ to the husband, and he’ll give me a blank look. I then have to go on a breadcrumb trail through people, places and things to get to where my brain is, leading him on a journey that I’ve just leapt to in my head.

My brain also fires off so quickly, I can forget what I’m doing, while I’m doing it. You know when you get up to go into the kitchen and forget why you’re there? That is me, daily. I live by lists, lists of lists, post-it notes, notes in my phone, a pad by my bed for when I wake up at 2am remembering something. I carry a note pad in my pocket at work so if I’m away from my desk I can pull it out. I can be found standing staring into space, pad and pen in hand, as by the time I’ve got them ready – I’ve forgotten what I’ve meant to remember. It is also my superpower though, as I can read a room and organise the shizzle out of anything because of what I’ve learned to do to organise myself.

I also didn’t realise until the past few weeks unconsciously since I’ve been in the workforce and flying a desk, I’ve set my day up by constantly drinking gallons of tea and water. Which means, I have to get up and away from my desk for a break. That was another 2am revelation that made me sit bolt up right in bed.

As I’m not aware of what is around me, I will walk into things. Fall over things. Drop things. I crash into people in the city, and not just because they walk so fricking slowly either. I am covered in bruises from walking into my desk; walking into walls or worktops; either opening the car door onto myself, or shutting the door onto my leg as my brain hasn’t yet got my leg in the car, before on autopilot it’s told me to shut the door.

If something is not in front of me, it does not exist. I love my bibelots as Georgie calls them, but if I have too many things around me, I get a bit lost. It’s great though, because I know when we go through the boxes of things in the garage over Easter, I’m going to see lots of things I’ve forgotten I had. As soon as I see it, I’ll remember. But seriously, the amount of

This has gone on a bit long so I’m going to leave you with a shining moment of ADHD glory. Every so often when I’m overstimulated and fretting about things, I will need ‘order and method’. Aside from buying a new notebook (the possibilities of them are endless. I can go into hyperdrive and go through the house on a purge and donate heaps of things to charity.

I used to live in a town with a fantastic second-hand bookshop. I’d take bags of books in, rummage around and come home with bags of different books #Bliss. One day I saw a book and thought excitedly, ‘I’ve not read that in ages!’ On the bus on the way home reviewing my bountiful haul, I opened the book up and saw my name in it.

I’ll tumble 4 ya

I’ll tumble 4 ya

by ee grant ♥ 1 Comment

With thanks to Culture Club for the music, and the title of this post. Tumble turns are what you do at the end of the pool. This is the second in a series of posts talking about my late ADHD diagnosis, today I’m concentrating on swimming. Before we start there is a mild content warning with some of my other MH diagnoses. I don’t discuss anything, but the words are there.

I started swimming over the Easter holidays when I was 9 and my brother was 7. We lived in a seaside town, during the summer, we lived on the beach. Mum and Dad wanted us safe in and by the water. This was an intensive course, with lessons every day during the school holidays. Edit – Mum said I was 7 and my brother 5 years old.

On the first day, I’m in the first group. Water makes sense to my body; I just slide through it. If any of you have read Ian Thorpe’s autobiography, This Is Me! he describes what it feels like to ‘catch’ a perfect stroke. The water feels different in your hand, over your skin, when you get it right. Each stroke you try and replicate it, sometimes more easily than others.

Before the first week of my swimming lessons had ended, I was taken aside by one of the teachers, who was the wife of the coach at a local swimming club. I was asked to demonstrate what I could do after four and a bit days of lessons, about 2 hours total. I still remember showing her, over 40 years later; she pulled me out my lesson, to the middle of the pool (that I would later teach in for years). I remember how proud I was I could do something effortlessly, see previous post about not being able to do anything quite right…

That club told my parents they thought I was a future backstroke Olympian. From there on in, I was being coached and guided towards that. I was swimming training, land training. When I got to my early teens, I began lifting weights under supervision, and was given a diet to follow with ratios of proteins to carbohydrates. I had special warm up program to follow at galas. And because people were telling me to do it, I just did it.

Which is another way ASD presents differently with Assigned Female At Birth (AFAB). Because we as a society, have had it ingrained to pat little girls on the head. Telling them to sit down, be quiet, don’t fuss – there, there, there. And it is also partly why ADHD and ASD are mis-diagnosed for years in AFAB, because we don’t present like Assigned Male At Birth, and what a lot of the out-of-date schemas for diagnosis rely on. We don’t bounce around in chairs or charge around in the playground. Instead, we sit with our hands in our laps, bouncing our ankles, twiddling our hair, and in my case, biting my nails.

When I was 10 or 11, I was flying at swimming. And I mean flying, competing against people 8-10 years older than me and beating them. I was invested in this, simply because I enjoyed being in the water. It was a safe space for me. I can remember one Saturday morning, watching my brother’s swimming lesson. I was sat on the pool deck, next to Mum, sitting on a wooden bench in full sun, wiggling as the bench was scratchy under my butt. The urge to jump in, clothes and all was intense. It was a real yearning. The water made sense to my body, still does. Also, as I had to concentrate on constantly improving my stroke, focussing on what my body was doing, my mind was relatively quiet.

The constant raising of my heartbeat also squirted enough dopamine into my bloodstream to help me concentrate at school. I hate to imagine what my life would have been like if I didn’t have swimming as a framework to hang it on.

The only other time my mind was silent, as I said in my previous post, was when I was reading voraciously. Reading by my nightlight if I was ‘this close’ to finishing a book, waking up fuzzy headed and grumpy the next morning.

One day, I was maybe 11 years old. I was pulled aside after a training session and got told that I needed to give another child the backstroke, because that was the only stroke she had. I was told, I was such a good all-rounder, that I could afford to give it to her. What this means is in swimming galas, I wouldn’t be the first choice to swim backstroke for the club in my age group, this other girl was being put in to races instead of me. Even though I was faster.

Remember, I was predicted to be a future Olympic champion, that disappeared. I don’t know what happened for this decision, maybe her parents talked to the coach. Mum and Dad moved my brother and I to another club.

That rejection hit hard. I got in the pool, and it was like I’d forgotten how to swim it. From there on in, I managed to get through individual medley races, but I felt like I was thrashing around, not getting anywhere. My only explanation is that my muscle memory had switched off with the trauma response.

It wasn’t until I was pregnant with our son, who I had at 36, and I found myself in an outdoor pool doing laps before work. It was a beautiful morning, I thought to myself, ‘I want to look at the clouds.’ I suddenly found my stroke again, because there was no pressure on me.

Before I was diagnosed with ADHD these were my diagnoses.

  • IBS, I also have coeliac disease, so the symptoms do cross over, but IBS is really exacerbated when your system is on fire with cortisol.
  • Generalised Anxiety Disorder
  • Complex Anxiety Disorder
  • Complex PTSD
  • Trauma
  • Depression
  • Suicidal ideation
  • Body Dysmorphia

It is really hard living in your skin, just hanging out, taking up space with the carbon form that carries your soul around. But your soul is wrong, different, odd, strange, quirky (if you’re lucky).

It’s really hard constantly being told you’re not worthy. That you don’t belong. Being bullied day in, day out at school. That you look just like a boy. That you look wrong with short hair, that you don’t like wearing dresses to parties. That you’d rather be colouring in, reading, cross-stitching, patchworking until your eyes give out. That people don’t understand that you’re happiest in water; be that at the beach, or in the pool. Water gives you something that is lacking across your life, and you’re proud of what you can do with it. During the summer holidays, you will float on your back and watch clouds go by until you get called out the sea to go home, to be able to do it all over again the next day.

I’m going to blow smoke up my butt here. I am a really good swimming teacher. I have taught thousands of people either to swim or to improve their strokes, because I can explain to them what the water feels like when they’re doing it right. And can give them shortcuts to help them find it when they’re doing it wrong. I love teaching adults, particularly people who have feared water their whole life. I am loudly enthusiastic even when people learn how to stand up for the first time. In my lessons I would encourage all of them to cheer each other on. The joy it gives everyone in the lesson when someone starts kicking and moving is beautiful.

Back in 2002 or 2003, I was rebooking a swimming school for the new term. Phones were ringing off the hook, people queueing out the door. I stood working the computer, taking details of the people queuing up, one customer came up and said ‘I’ve been told I need to book in with Emily’, I said ‘That’s me!’ At another pool, another child talked about me so much, her pregnant aunt called her new daughter Emily.

But living with ADHD can mean rejection sensitive dysphoria, an extreme reaction to an outcome that other people wouldn’t worry over. This is what I had when I was told I wouldn’t be swimming backstroke anymore. This has also happened numerous times at work; as we’re concentrating on swimming, I’ll share this story then we’ll close, as I’ve rattled on long enough.

At one leisure centre, I was covering a lesson for another teacher who’d called in sick. These were tiny tots who hadn’t met me before, as at this pool I specialised in the school classes, as I could handle lots of children in one lesson. A couple of parents didn’t like what I was doing, only as I was different to their normal teacher, they stood on the poolside to watch me. The children hadn’t met me before, I’d got them all sitting on the steps to the pool playing with toys, blowing bubbles and a few games, just improving their water confidence to ease them into the lesson. When I stopped the lesson to ask the parents to go back to the viewing gallery, they called the Duty Manager out instead saying that I didn’t know what I was doing. We went back and forth a bit on that I’d been teaching for at least 10 years now and I did know what I was doing. The DM came onto poolside and backed them up – ignoring the policy. My reaction isn’t one I’m proud of; I got out the pool in tears and left him to sort them all out.

Because I knew, (know), I am a good teacher, my pride was hurt as I wasn’t listened to, let alone backed up by the DM doing his job.

A sense of hubris is always fun to live with too. When we know we’re good; we can be insufferable.

Not long after that, I stopped teaching swimming and never got back into it. It was like the backstroke thing all over again, it felt like it was taken away from me. Instead of me being able to give it up when I was done. RSD is what I think I’ve been living with as part of my ADHD, not some of the other labels I’ve picked up along my travels. Particularly when RSD ruminates, it can present as anxiety and depression, spiralling down further as your brain believes its’ thoughts. Remember, you are not your thoughts, you are thinking your thoughts.

But there’s more on that in my next post.